Skip to main content

Taking steps toward a diabetes cure

07/24/2013 03:32PM, Published by ACL, Categories: In Print, News


Young people from across the country and overseas took part in the Children's Congress to ask for continued research funding for diabetes.



By John Chambless

Staff Writer

Lydia Rehrman remembers every detail of the day her daughter Amelia, then 4 years old, was diagnosed with type 1 diabetes.

"It was at the Mushroom Festival," Lydia said this week during an interview. "I had this big thermos of water and she drank the whole thing. I was thinking, 'What is going on? Something's not right.' It was her first week of preschool. I took her to school on that Monday and took a urine sample to the doctor, and they called and said, 'Get her here right away.' I got her, took her to Dupont Hospital, and that's where she was diagnosed. … Type 1 is immediate onset, and you're immediately insulin dependent for life."

Image title

Now 11, Amelia doesn't remember everything about those early days, but she does remember the needles she had to have. "Thankfully, her sugar wasn't too high when she was admitted to ths hospital," Lydia said. "It was only in the 200s. You hear about some kids who are in the thousands - a deadly serious situation.

"They keep you in the hospital for three days because they have to train you," Lydia added. "It's like you're going home with a new baby. Everything's different. We were trained how to do the needles and all that stuff at the hospital."

There are two sets of twins in the Rehrman family, but no history of diabetes in the family or in Amelia's siblings - although they are being closely watched for any symptoms. The family lives in West Grove, where Amelia and her siblings - Maddie, Leah and Ben - are home-schooled.

Type 1 diabetes is not related to diet or lack of exercise. It occurs when the pancreas does not produce enough insulin to break down the sugars in food. Decades ago, it was frequently fatal. Today, it can be managed with careful monitoring of sugar levels and use of insulin.

When she was 7, Amelia got a small insulin pump that she wears every day.

"Every three days I have to change the (injection) site," Amelia said. "So instead of having a bunch of needles every day, I only have one every three days, except for pricking my finger to test my sugar. It just makes it easier to give insulin."

The pump allows Amelia to play with her friends and siblings, and eat pretty much what she wants - although treats like birthday cake have to be small, and her insulin levels have to be watched carefully afterwards to make sure that occasional treats don't cause a problem.

In early July, Amelia went to Washington, D.C. with her family to take part in the three-day 

Image title

Children's Congress put on by the JDRF (formerly known as the Juvenile Diabetes Research Foundation).

"They pick 150 kids out of 1,500 applications," Amelia said. "The first day, we sang a song with Crystal Bowersox from 'American Idol,' who also has diabetes. The song was called 'Promise to Remember Me.' I talked to Congress about giving more money to the JDRF and the Special Diabetes  Program."

The young people met with their congressmen to put a face on the problem of juvenile diabetes. About half of the money JDRF uses for research is raised by volunteers and groups. The other half comes from the federal government. "They're not just asking just for a handout," Amelia said, "but they need that extra money to get these kids cured. And they're so close to a cure.

"There are all sorts of things being tested," Lydia said, including an artificial pancreas system that may someday eliminate the daily grind of testing and monitoring for 18 months at a time.

While in Washington, Amelia met Rep. Joe Pitts and Sen. Casey, and got "this close" to Vice President Joe Biden in a group photo, Lydia said, smiling. But mainly, she enjoyed hanging out for three days with young people who understood what it means to manage type 1 diabetes.

"She made a lot of really good friends," Lydia said. "They had a lot of fun doing things. Even meals at the restaurants were fun, with them all testing their sugar and being concerned about their carbohydrates, where usually it's just her that has to do that. It was nice to be with other kids."

Amelia's commitment to funding research also extends to the Diabetes Dash, an event she started four years ago in New Garden Township Park. It's held in November each year.

"I asked people to come to the park with their bikes, scooters and roller skates, and ride around the park and give a donation to diabetes," she said. Each year, the event raises $300 to $400, which Amelia sends to the JDRF.

Amelia writes a blog (peace.love.hope.diabetes), where she posts photos of her meter and her insulin pump, explains the process of testing your blood, and opens a forum for questions from other kids about their concerns. An everyday challenge -- like being denied a cookie when her siblings are having them -- is addressed in a recent post.

"I just really enjoy blogging, and I thought we could share experiences with other people and talk about diabetes," she said.

She posted photos and comments about her trip to Washington on another blog (walkingtowashington), and she operates a site where she posts the photos she takes with her own camera. Her images of nature show a keen sense of composition. She wants to pursue photography as she grows up, particularly art photos of nature and portraits.

With so much going on in her life, Amelia said that type 1 diabetes doesn't hold her back. She can't describe the feeling she gets when her blood sugar is too high or low, but she knows when it's happening and what she can do to stabilize herself. As she enters her teen years, she said, she wants to keep raising awareness for research until a cure is found.

"I can't wait to throw away all the needles and the stuff that we have," Lydia said, smiling. "That will be a beautiful day."


Like what you're reading? Subscribe to Chester County's free newsletter to catch every headline



jdrf juvenile diabetes research foundation special diabetes program


You might also like


  • Sunday Brunch

    05/22/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • The Spayed Club now has THREE transport locations throughout the Greater Philadelphia area -- Pot...


  • Fitness Walks

    05/27/2015
    08:30am — 09:30am

    Turn off the treadmill and forget they gym! Start your day with an invigorating hour-long hike th...


  • Gentle Yoga

    05/27/2015
    05:00pm — 06:00pm

    Reduce the aches and pains of age by increasing your range of motion through the practice of yoga...


  • Join us at Child Guidance's Coatesville Office for an in-depth workshop that will address what is...


  • Hatha Yoga

    05/27/2015
    06:30pm — 07:30pm

    This series of vigorous exercises is designed to strengthen the body and increase flexibility whi...


  • Sunday Brunch

    05/28/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Heuchera: The Perfect Shade Plant

    05/28/2015
    01:00pm — 03:00pm

    Discover one of the most popular perennials for shade gardens. Mt. Cuba Center recently completed...


  • Clutterers Anonymous

    05/28/2015
    06:00pm — 07:00pm

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • Heart Health - Preventing Heart Disease & Strokes

    05/28/2015
    06:30pm — 07:30pm

    We will learn how healthier eating habits, a manageable fitness routine and simple stress managem...


  • Sunday Brunch

    05/22/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Annual Avon-Grove Memorial Parade

    05/23/2015
    09:00am — 12:00pm

    Memorial Day is a federal holiday in the United States for remembering the people who died while ...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Sunday Brunch

    05/23/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Prehistoric Newlin Nature Walk

    05/23/2015
    01:30pm — 03:30am

    Become a time traveler in this exciting walk to explore signs of the Newlin Grist Mill nature par...


  • Philly POPS at Longwood Gardens for Memorial Day

    05/23/2015
    07:30pm — 09:00pm

    The upcoming Memorial Day holiday weekend provides the perfect opportunity for The Philly POPS to...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Half the Money, all the bottle. Every Tuesday

    05/24/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Taste Kennett Food Tours

    05/24/2015
    01:00pm — 04:00pm

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Taste Kennett Food Tours

    05/24/2015
    01:00pm — 04:00pm

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Half the Money, all the bottle. Every Tuesday

    05/25/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Monday's are Whiskey nights at Minihane's

    05/25/2015
    05:00pm — 11:00pm

    Whisky is not the same as Whiskey! There is some debate about whether or not Scottish distill...


  • Catch living history as the Mohican Base Ball Club (Mohican BBC) of Kennett Square play a exhibit...


  • Debtors Anonymous

    05/25/2015
    06:00pm — 07:00pm

    In D.A., our purpose is threefold: to stop incurring unsecured debt, to share our experience wit...


  • Half the Money, all the bottle. Every Tuesday

    05/26/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • The Spayed Club now has THREE transport locations throughout the Greater Philadelphia area -- Pot...


  • Fitness Walks

    05/27/2015
    08:30am — 09:30am

    Turn off the treadmill and forget they gym! Start your day with an invigorating hour-long hike th...


  • Gentle Yoga

    05/27/2015
    05:00pm — 06:00pm

    Reduce the aches and pains of age by increasing your range of motion through the practice of yoga...


  • Join us at Child Guidance's Coatesville Office for an in-depth workshop that will address what is...


  • Hatha Yoga

    05/27/2015
    06:30pm — 07:30pm

    This series of vigorous exercises is designed to strengthen the body and increase flexibility whi...


  • Sunday Brunch

    05/28/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Heuchera: The Perfect Shade Plant

    05/28/2015
    01:00pm — 03:00pm

    Discover one of the most popular perennials for shade gardens. Mt. Cuba Center recently completed...


  • Clutterers Anonymous

    05/28/2015
    06:00pm — 07:00pm

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • Heart Health - Preventing Heart Disease & Strokes

    05/28/2015
    06:30pm — 07:30pm

    We will learn how healthier eating habits, a manageable fitness routine and simple stress managem...


  • DFVA Greenville Summer Art Show

    05/29/2015
    10:00am — 07:00pm

    An impressive group of over thirty outstanding professional artists from the Brandywine Valley ar...


  • DFVA Summer Art Show

    05/29/2015
    10:00am — 07:00pm

    An impressive group of outstanding professional artists from the Brandywine Valley area will exhi...


  • Sunday Brunch

    05/29/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • PurpleStride Delaware 2015 - 5K Run/Walk

    05/30/2015
    08:00am — 11:00am

    The Delaware Affiliate of the Pancreatic Cancer Action Network is hosting its third annual Purple...


  • PurpleStride Delaware 2015 - 5K Run/Walk

    05/30/2015
    08:00am — 11:00am

    PurpleStride 2015 is a 5K run and family friendly walk. The Pancreatic Cancer Action Network is b...


  • Multi-Family Yard Sale in Oxford

    05/30/2015
    09:00am — 03:00pm

    Electronics, tools, baby clothes, toys, kitchen, bath, bedding, decorations, crafts and so much more


  • CLAY MONOPRINTING WITH MITCH LYONS

    05/30/2015
    10:00am — 04:00pm

    CLAY MONOPRINTING WITH MITCH LYONS Level: All levels, Limit: 10 students Instructor: Mitch Lyon...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • DFVA Greenville Summer Art Show

    05/30/2015
    10:00am — 07:00pm

    An impressive group of over thirty outstanding professional artists from the Brandywine Valley ar...


  • DFVA Summer Art Show

    05/30/2015
    10:00am — 07:00pm

    An impressive group of outstanding professional artists from the Brandywine Valley area will exhi...


  • OA-BEST Expo

    05/30/2015
    10:00am — 02:00pm

    FUN FOR ALL! The Chester and Lancaster County communities have always been tied deeply to the ro...


  • Sunday Brunch

    05/30/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Explore Native Orchids

    05/30/2015
    01:00pm — 03:00pm

    Discover what makes native orchids so special. Join Smithsonian’s orchid expert Tom Mirenda as he...


  • Pawty at the Preserve

    05/30/2015
    03:00pm — 07:00pm

    Join Canine Partners for Life at Pawty at the Preserve, as we celebrate 25 years of creating life...


  • Multi-Family Yard Sale in Oxford

    05/31/2015
    09:00am — 03:00pm

    Electronics, tools, baby clothes, toys, kitchen, bath, bedding, decorations, crafts and so much more


  • CLAY MONOPRINTING WITH MITCH LYONS

    05/31/2015
    10:00am — 04:00pm

    CLAY MONOPRINTING WITH MITCH LYONS Level: All levels, Limit: 10 students Instructor: Mitch Lyon...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Half the Money, all the bottle. Every Tuesday

    05/31/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Taste Kennett Food Tours

    05/31/2015
    01:00pm — 04:00pm

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Taste Kennett Food Tours

    05/31/2015
    01:00pm — 04:00pm

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Half the Money, all the bottle. Every Tuesday

    06/01/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Monday's are Whiskey nights at Minihane's

    06/01/2015
    05:00pm — 11:00pm

    Whisky is not the same as Whiskey! There is some debate about whether or not Scottish distill...


  • Debtors Anonymous

    06/01/2015
    06:00pm — 07:00pm

    In D.A., our purpose is threefold: to stop incurring unsecured debt, to share our experience wit...


  • Half the Money, all the bottle. Every Tuesday

    06/02/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Wilmington Handbell Ensemble Concert

    06/02/2015
    07:30pm — 08:15pm

    Presents our spring concert program, "March On"


  • Gentle Yoga

    06/03/2015
    05:00pm — 06:00pm

    Reduce the aches and pains of age by increasing your range of motion through the practice of yoga...


  • Hatha Yoga

    06/03/2015
    06:30pm — 07:30pm

    This series of vigorous exercises is designed to strengthen the body and increase flexibility whi...


  • Sunday Brunch

    06/04/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Clutterers Anonymous

    06/04/2015
    06:00pm — 07:00pm

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • 5th Annual Twisted Vintner

    06/04/2015
    06:00pm — 09:00pm

    Concordville - Chadds Ford Rotary's fundraiser to support local charities includes Wine, Beer and...


  • Sunday Brunch

    06/05/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • On June 6th, the Avon Grove High School Football Team will be hosting a community yard sale. Tab...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Sunday Brunch

    06/06/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • 2015 Chester County Blues Barbeque

    06/06/2015
    02:00pm — 07:00pm

    The Chester County Blues BBQ is an annual event sponsored by the Coventry Lions Club featuring re...


  • Sustainable Splurges: A Feast for the Senses

    06/06/2015
    06:00pm — 08:00pm

    Enjoy delicious, locally made foods – wine, chocolate, honey and cheese – while roaming an exclu...


  • 150th Anniversary Civil War Reconciliation Ball

    06/06/2015
    06:00pm — 10:00pm

    Dinner, Dancing and an Auction! Reconciliation Ball to Commemorate the 150th Anniversary of the e...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Half the Money, all the bottle. Every Tuesday

    06/07/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Steamin' Day at Auburn Heights

    06/07/2015
    12:30pm — 04:30pm

    Join the Marshall Steam Museum at Auburn Heights for the first Steamin' Day of the season! New fo...


  • Taste Kennett Food Tours

    06/07/2015
    01:00pm — 04:00pm

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Taste Kennett Food Tours

    06/07/2015
    01:00pm — 04:00pm

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Mt. Cuba Center Plein Air Workshop

    06/08/2015
    09:30am — 03:30pm

    Appreciate the intricacies of painting outdoors as you interpret the beauty of Mt. Cuba Center's ...


  • Half the Money, all the bottle. Every Tuesday

    06/08/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Monday's are Whiskey nights at Minihane's

    06/08/2015
    05:00pm — 11:00pm

    Whisky is not the same as Whiskey! There is some debate about whether or not Scottish distill...


  • Debtors Anonymous

    06/08/2015
    06:00pm — 07:00pm

    In D.A., our purpose is threefold: to stop incurring unsecured debt, to share our experience wit...


  • Mt. Cuba Center Plein Air Workshop

    06/09/2015
    09:30am — 03:30pm

    Appreciate the intricacies of painting outdoors as you interpret the beauty of Mt. Cuba Center's ...


  • Half the Money, all the bottle. Every Tuesday

    06/09/2015
    11:00am — 09:00pm

    EVERY TUESDAY ‎Half the money, all the bottle.1/2 Price Bottle of Wine / Every Tuesday with your...


  • Fitness Walks

    06/10/2015
    08:30am — 09:30am

    Turn off the treadmill and forget the gym! Start your day with an invigorating hour-long hike thr...


  • Mt. Cuba Center Plein Air Workshop

    06/10/2015
    09:30am — 03:30pm

    Appreciate the intricacies of painting outdoors as you interpret the beauty of Mt. Cuba Center's ...


  • Gentle Yoga

    06/10/2015
    05:00pm — 06:00pm

    Reduce the aches and pains of age by increasing your range of motion through the practice of yoga...


  • Hatha Yoga

    06/10/2015
    06:30pm — 07:30pm

    This series of vigorous exercises is designed to strengthen the body and increase flexibility whi...


  • Mt. Cuba Center Plein Air Workshop

    06/11/2015
    09:30am — 03:30pm

    Appreciate the intricacies of painting outdoors as you interpret the beauty of Mt. Cuba Center's ...


  • Sunday Brunch

    06/11/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Clutterers Anonymous

    06/11/2015
    06:00pm — 07:00pm

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • Mt. Cuba Center Plein Air Workshop

    06/12/2015
    09:30am — 03:30pm

    Appreciate the intricacies of painting outdoors as you interpret the beauty of Mt. Cuba Center's ...


  • Sunday Brunch

    06/12/2015
    11:00am — 02:00pm

    Every Sunday from 11-2PM Continental Buffet, Waffle bar, fresh fruits, Mimosa, Bloody Mary an...


  • Enjoy a night out with friends at Mt. Cuba Center! Unwind as you sip wine and create garden maste...


Chester County High School Sports