Skip to main content

Taking steps toward a diabetes cure

07/24/2013 03:32PM, Published by ACL, Categories: In Print, News


Young people from across the country and overseas took part in the Children's Congress to ask for continued research funding for diabetes.



By John Chambless

Staff Writer

Lydia Rehrman remembers every detail of the day her daughter Amelia, then 4 years old, was diagnosed with type 1 diabetes.

"It was at the Mushroom Festival," Lydia said this week during an interview. "I had this big thermos of water and she drank the whole thing. I was thinking, 'What is going on? Something's not right.' It was her first week of preschool. I took her to school on that Monday and took a urine sample to the doctor, and they called and said, 'Get her here right away.' I got her, took her to Dupont Hospital, and that's where she was diagnosed. … Type 1 is immediate onset, and you're immediately insulin dependent for life."

Image title

Now 11, Amelia doesn't remember everything about those early days, but she does remember the needles she had to have. "Thankfully, her sugar wasn't too high when she was admitted to ths hospital," Lydia said. "It was only in the 200s. You hear about some kids who are in the thousands - a deadly serious situation.

"They keep you in the hospital for three days because they have to train you," Lydia added. "It's like you're going home with a new baby. Everything's different. We were trained how to do the needles and all that stuff at the hospital."

There are two sets of twins in the Rehrman family, but no history of diabetes in the family or in Amelia's siblings - although they are being closely watched for any symptoms. The family lives in West Grove, where Amelia and her siblings - Maddie, Leah and Ben - are home-schooled.

Type 1 diabetes is not related to diet or lack of exercise. It occurs when the pancreas does not produce enough insulin to break down the sugars in food. Decades ago, it was frequently fatal. Today, it can be managed with careful monitoring of sugar levels and use of insulin.

When she was 7, Amelia got a small insulin pump that she wears every day.

"Every three days I have to change the (injection) site," Amelia said. "So instead of having a bunch of needles every day, I only have one every three days, except for pricking my finger to test my sugar. It just makes it easier to give insulin."

The pump allows Amelia to play with her friends and siblings, and eat pretty much what she wants - although treats like birthday cake have to be small, and her insulin levels have to be watched carefully afterwards to make sure that occasional treats don't cause a problem.

In early July, Amelia went to Washington, D.C. with her family to take part in the three-day 

Image title

Children's Congress put on by the JDRF (formerly known as the Juvenile Diabetes Research Foundation).

"They pick 150 kids out of 1,500 applications," Amelia said. "The first day, we sang a song with Crystal Bowersox from 'American Idol,' who also has diabetes. The song was called 'Promise to Remember Me.' I talked to Congress about giving more money to the JDRF and the Special Diabetes  Program."

The young people met with their congressmen to put a face on the problem of juvenile diabetes. About half of the money JDRF uses for research is raised by volunteers and groups. The other half comes from the federal government. "They're not just asking just for a handout," Amelia said, "but they need that extra money to get these kids cured. And they're so close to a cure.

"There are all sorts of things being tested," Lydia said, including an artificial pancreas system that may someday eliminate the daily grind of testing and monitoring for 18 months at a time.

While in Washington, Amelia met Rep. Joe Pitts and Sen. Casey, and got "this close" to Vice President Joe Biden in a group photo, Lydia said, smiling. But mainly, she enjoyed hanging out for three days with young people who understood what it means to manage type 1 diabetes.

"She made a lot of really good friends," Lydia said. "They had a lot of fun doing things. Even meals at the restaurants were fun, with them all testing their sugar and being concerned about their carbohydrates, where usually it's just her that has to do that. It was nice to be with other kids."

Amelia's commitment to funding research also extends to the Diabetes Dash, an event she started four years ago in New Garden Township Park. It's held in November each year.

"I asked people to come to the park with their bikes, scooters and roller skates, and ride around the park and give a donation to diabetes," she said. Each year, the event raises $300 to $400, which Amelia sends to the JDRF.

Amelia writes a blog (peace.love.hope.diabetes), where she posts photos of her meter and her insulin pump, explains the process of testing your blood, and opens a forum for questions from other kids about their concerns. An everyday challenge -- like being denied a cookie when her siblings are having them -- is addressed in a recent post.

"I just really enjoy blogging, and I thought we could share experiences with other people and talk about diabetes," she said.

She posted photos and comments about her trip to Washington on another blog (walkingtowashington), and she operates a site where she posts the photos she takes with her own camera. Her images of nature show a keen sense of composition. She wants to pursue photography as she grows up, particularly art photos of nature and portraits.

With so much going on in her life, Amelia said that type 1 diabetes doesn't hold her back. She can't describe the feeling she gets when her blood sugar is too high or low, but she knows when it's happening and what she can do to stabilize herself. As she enters her teen years, she said, she wants to keep raising awareness for research until a cure is found.

"I can't wait to throw away all the needles and the stuff that we have," Lydia said, smiling. "That will be a beautiful day."


Like what you're reading? Subscribe to Chester County's free newsletter to catch every headline



jdrf juvenile diabetes research foundation special diabetes program


You might also like


  • This is a great time to make sure that the students in your house have the most important school ...


  • Clutterers Anonymous

    09/03/2015
    06:00PM — 07:00PM

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Debtors Anonymous

    09/07/2015
    06:00PM — 07:00PM

    In D.A., our purpose is threefold: to stop incurring unsecured debt, to share our experience wit...


  • This is a great time to make sure that the students in your house have the most important school ...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Clutterers Anonymous

    09/03/2015
    06:00PM — 07:00PM

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • This is a great time to make sure that the students in your house have the most important school ...


  • This is a great time to make sure that the students in your house have the most important school ...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • This is a great time to make sure that the students in your house have the most important school ...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Steamin’ Day at Auburn Heights

    09/06/2015
    12:30PM — 04:30PM

    Join the Marshall Steam Museum for Steamin' Day, a fun-filled day celebrating local history and l...


  • Taste Kennett Food Tours

    09/06/2015
    01:00PM — 04:00PM

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Debtors Anonymous

    09/07/2015
    06:00PM — 07:00PM

    In D.A., our purpose is threefold: to stop incurring unsecured debt, to share our experience wit...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Bird Walks At Middle Run

    09/08/2015
    08:00AM — 10:00AM

    Free! Every Autumn, more than 30 species of warblers pass through this county park and birders ...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Tail Waggin' Tutors

    09/09/2015
    04:30PM — 06:00PM

    This relaxed animal friendly atmosphere allows students to practice the skill of reading. With c...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Warm Season Grass Walk

    09/10/2015
    09:00AM — 12:00PM

    By creating a yard with vegetation that offers food and cover, you can create a refuge for severa...


  • Little Music Makers

    09/10/2015
    11:00AM — 11:30AM

    Every Thursday at the USTC, come Jam Out with… Little Music Makers …a mommy and me music class ...


  • Clutterers Anonymous

    09/10/2015
    06:00PM — 07:00PM

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • 64th Brandywine Open House and Kickoff

    09/10/2015
    06:30PM — 08:00PM

    The 64th Brandywine Scouts of the Baden-Powell Service Association (BPSA) will hold their annual ...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Glen Willow Combined Driving Event

    09/11/2015
    08:00AM — 05:00PM

    Come enjoy the excitement, spectacle and thrills of carriage driving at the Glen Willow Combined ...


  • Parents Night Out: Marsh Monarchs

    09/11/2015
    06:30PM — 08:30AM

    Parent's Night Out: Set mom and dad loose to have dinner along Wilmington's Riverfront while you ...


  • Parents Night Out: Marsh Monarchs

    09/11/2015
    06:30PM — 08:30PM

    Parent's Night Out: Set mom and dad loose to have dinner along Wilmington's Riverfront while you ...


  • Mysterious Moths

    09/11/2015
    08:15PM — 10:00PM

    Join insect expert, Alyssa Molin-Graves, and TLC to explore the interesting and mysterious lives ...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Monarchs And More

    09/12/2015
    09:30AM — 11:00AM

    The amazing Monarch and other butterflies are busy in the meadow! With net in hand, search for th...


  • Monarchs And More

    09/12/2015
    09:30AM — 11:00AM

    The amazing Monarch and other butterflies are busy in the meadow! With net in hand, search for ...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Second Saturdays

    09/12/2015
    10:00AM — 04:00PM

    Join us on the Second Saturday of each month for special programming in our native plant gardens....


  • Secret Gardens of West Chester

    09/12/2015
    10:00AM — 03:00PM

    Now in its eleventh year, Barclay Friends is hosting an exclusive walking tour of 14+ private gar...


  • Trees of Newlin Nature Walk

    09/12/2015
    10:00AM — 12:00PM

    Discover the unique trees of Newlin on this walk that explores big trees, old trees, rare trees, ...


  • Mattress Sale Fundraiser

    09/12/2015
    10:00AM — 05:00PM

    High Quality Mattresses at great prices and for a great cause!


  • Explore a loose and contemporary approach to Spontaneous Plein Air Painting. Workshop with Georga...


  • Food Truck Festival

    09/12/2015
    12:00PM — 05:00PM

    Calling all Foodies!!! Join us on Saturday, September 12th from 12:00 p.m. - 5:00 p.m. for a Food...


  • Victory for the Headwaters

    09/12/2015
    12:00PM — 08:00PM

    Victory Brewing Company (Victory) will host Victory for the Headwaters, a daylong celebration and...


  • Hootenanny Hoedown

    09/12/2015
    05:30PM

    Our 4th annual Hootenanny features a fantastic list of conservation minded partiers, delicious fo...


  • Milburn Orchards Grandparents Weekend Festival

    09/12/2015
    10:00AM — 05:00PM

    Grandparents get in FREE when accompanied by their grandchildren! Fall Festivals include unlimit...


  • This is a great time to make sure that the students in your house have the most important school ...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Taste Kennett Food Tours

    09/13/2015
    01:00PM — 04:00PM

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Milburn Orchards Grandparents Weekend Festival

    09/13/2015
    10:00AM — 05:00PM

    Grandparents get in FREE when accompanied by their grandchildren! Fall Festivals include unlimit...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Join us for a golf outing at Broad Run Golfer's Club. Event proceeds help to prevent and end fam...


  • Ready to Read

    09/14/2015
    10:30AM — 11:00PM

    Join our storyteller for book readings, songs, rhymes and crafts. From Monday, September 14 - Mo...


  • Tail Waggin' Tutors

    09/14/2015
    04:30PM — 06:00PM

    This relaxed animal friendly atmosphere allows students to practice the skill of reading. With c...


  • Meet & Greet Dharma

    09/14/2015
    05:00PM — 06:00PM

    Meet Dharma, a sweet German Shepard that is super smart! All are invited to meet her (without ap...


  • Debtors Anonymous

    09/14/2015
    06:00PM — 07:00PM

    In D.A., our purpose is threefold: to stop incurring unsecured debt, to share our experience wit...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Bird Walks At Middle Run

    09/15/2015
    08:00AM — 10:00AM

    Free! Every Autumn, more than 30 species of warblers pass through this county park and birders ...


  • Tail Waggin' Tutors

    09/15/2015
    04:30PM — 06:00PM

    This relaxed animal friendly atmosphere allows students to practice the skill of reading. With c...


  • Meet & Greet Lizzy

    09/15/2015
    05:00PM — 06:00PM

    Meet Lizzy, a Pembroke Welsh Corgi show dog champion! She is affectionate, smart and works at th...


  • Kids Book Club

    09/15/2015
    06:00PM — 07:00PM

    Read or listen to a book of your choice and join us to talk about it with the group. Bring a fri...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Tail Waggin' Tutors

    09/16/2015
    04:30PM — 06:00PM

    This relaxed animal friendly atmosphere allows students to practice the skill of reading. With c...


  • Where Good Sleep Begins Workshop

    09/16/2015
    06:30PM — 08:30PM

    Banish Bedtime & Naptime Battles with The Sleep Lady's Gentle Method. Every parent knows getti...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Little Music Makers

    09/17/2015
    11:00AM — 11:30AM

    Every Thursday at the USTC, come Jam Out with… Little Music Makers …a mommy and me music class ...


  • Clutterers Anonymous

    09/17/2015
    06:00PM — 07:00PM

    Clutterers Anonymous℠ (CLA℠) is a fellowship of men and women who share their experience, strengt...


  • Teen Book Club

    09/17/2015
    06:00PM — 07:00PM

    Read or listen to a book of your choice and join us to talk about it with the group. Bring a fri...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Eye Spy In The Forest

    09/18/2015
    09:30AM — 11:00AM

    Let’s play Eye Spy in the forest! Nests, toads, salamanders, mushrooms, leaf piles …what will w...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Thresholds of Chester County Seeks Volunteers

    09/19/2015
    08:30AM — 04:00PM

    Thresholds of Chester County is a nonprofit organization that teaches decision making tactics to ...


  • Walk for Life

    09/19/2015
    09:00AM — 11:30AM

    Join us for a day at the park! Enjoy a 2.5 mile walk through the lovely Anson B. Nixon park in Ke...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Free! Monarch Migration Celebration

    09/19/2015
    12:00PM — 04:00PM

    Celebrate one of nature's wonders…the great Monarch butterfly migration! Encounter live butterf...


  • Farm to Fork

    09/19/2015
    06:00PM — 09:00PM

    This year’s Farm to Fork highlights the abundance of the season while honoring the important role...


  • Share a piece of Johnny Appleseed's Birthday cake, then pose and take pictures with the birthday ...


  • This is a great time to make sure that the students in your house have the most important school ...


  • The Chester Springs Studio wood kiln is a two chamber noborigama, constructed in 2014 during a wo...


  • Taste Kennett Food Tours

    09/20/2015
    01:00PM — 04:00PM

    Taste Kennett Food Tours, creators of memorable, unique and fun food experiences, offer three-hou...


  • Catch a ride on Coverdale’s hay wagon for a fun fall hayride through the preserve. Hop off at a...


  • Butterflies At Bucktoe

    09/20/2015
    02:00PM — 04:00PM

    Explore the beautifuln Bucktoe Creek Preserve in search of Monarchs, Swallowtails, and Fritillari...


  • Come join Lee Peterson, author of “Peterson’s Field Guide to Wild Edible Plants of Eastern/Centra...


  • Share a piece of Johnny Appleseed's Birthday cake, then pose and take pictures with the birthday ...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Ready to Read

    09/21/2015
    10:30AM — 11:00PM

    Join our storyteller for book readings, songs, rhymes and crafts. From Monday, September 14 - Mo...


  • Tail Waggin' Tutors

    09/21/2015
    04:30PM — 06:00PM

    This relaxed animal friendly atmosphere allows students to practice the skill of reading. With c...


  • Debtors Anonymous

    09/21/2015
    06:00PM — 07:00PM

    In D.A., our purpose is threefold: to stop incurring unsecured debt, to share our experience wit...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Bird Walks At Middle Run

    09/22/2015
    08:00AM — 10:00AM

    Free! Every Autumn, more than 30 species of warblers pass through this county park and birders ...


  • Backyard Explorers

    09/22/2015
    10:30AM

    Tuesday, September 22 at 10:30 AM, Ages 3 – 5, registration required. There’s so much to discove...


  • Tail Waggin' Tutors

    09/22/2015
    04:30PM — 06:00PM

    This relaxed animal friendly atmosphere allows students to practice the skill of reading. With c...


  • This is a great time to make sure that the students in your house have the most important school ...


  • Green By Nature Preschool: Coolest Creatures

    09/23/2015
    09:30AM — 11:00AM

    They can climb walls, lift 500 times their own weight, fly thousands of miles - even though the...


  • Tail Waggin' Tutors

    09/23/2015
    04:30PM — 06:00PM

    This relaxed animal friendly atmosphere allows students to practice the skill of reading. With c...


  • Autumn Equinox Hike & Campfire

    09/23/2015
    06:00PM — 07:30PM

    Welcome the coming of autumn! We will head to the Hawk Watch to scan the skies for soaring rapt...


Chester County High School Sports